Our goal is to help children and their families suffering from a rare, chronic lung disease.
Although the frequency of lung diseases in general is high, there are more than 100 rare and often chronic diseases, most of which are difficult to detect and even harder to treat. Therefore today, worldwide efforts are being made to improve the (medical) care of affected persons.
In Europe, the paediatric cases of rare lung diseases are collected and reviewed in context of the children’s Interstitial Lung Disease (Child-EU) Project. This Project has the goal to improve the medical care of affected children by collecting and analysing cases and by discussing symptoms and therapeutic efforts with experts in the field of paediatric lung disease. We work in close collaboration with this network.
Our focus here is on the treatment of children and adolescents with bronchiolitis obliterans. In case your child is suffering from a chronic lung disease you are very welcome to make an appointment for examination and advice at the local children’s hospital in Frankfurt/M.
If you could imagine to help us with this project please visit our Support page .